Neurologist turned ALS patient shares diagnosis journey and advocacy

Christopher Campos, a neurologist and assistant professor at UC Davis Health, reflects on his transition from informing patients about ALS to confronting the diagnosis himself in 2025. After noticing hand weakness in late 2023, he endured a two-year diagnostic delay before confirming the disease, a timeline he says is typical for ALS. The progression has left him unable to perform basic tasks, requiring tube feeding, eye-tracking communication, and full assistance from family.

Despite these limitations, he has found new ways to engage, such as online chess, and remains actively involved in advocacy for patient autonomy and research funding. Campos stresses that while scientific understanding is improving and new therapies are entering trials, the healthcare system must better protect the rights and dignity of those living with ALS. He calls for laws, policies, and societal attitudes that keep the voices of patients central in decision-making.